Comments on: Day 44, Here be Dragons! /2018/05/04/day-44-here-be-dragons/ A blog to record the journey of our 6 year old daughter Amber's progress, which began when she was rushed to the ER on March 22 2018 with a hemorrhaged tumor that caused a stroke, and the discovery that she has glioblastoma, a very aggressive form of brain cancer. We're going to make this journey in Amber's Way – with some spunk, a smirk, and a ton of hope and faith. Sun, 18 Aug 2024 00:47:46 +0000 hourly 1 https://wordpress.org/?v=6.6.1 By: Chuck Mattern /2018/05/04/day-44-here-be-dragons/#comment-520 Mon, 07 May 2018 10:28:14 +0000 http://ambersway.com/?p=384#comment-520 Caron and Matt,

I’ve sent over a number of spiritual and philosophical comments, this one is practical.

When Phil, my step dad, came home from the hospital after his cancer surgery his insurance covered home nursing and a number of other things that helped us make life work. Our insurance plan also has some great benefits that our People Team can help work through. I figure you’ve already done that home work but wanted to encourage you to look at all of the options. Having kind, skilled, experienced hands around for even part of the day was a huge help to us and let us invest time in the other ins and outs of keeping a home and family healthy.

You and Caron are my heroes, you’ve been through thick and thin on this and we all know the work’s not done yet. I know bringing a stranger into your home may not be the future you’re hoping for, but in the near-term, it may be the future that your whole family needs. I think there’s some kind of circular blessing pattern going on here, I found that most of the home health care workers who came through my folks house blessed us in ways we hadn’t expected. There is a lot of love between us but there was a time when each of us needed to just sit down, individually and love ourselves just a little bit, to catch our breath and recuperate. My Dad is the biggest giver I know, shirt off his back? No problem. But even he will tell you that if you don’t make a little time to rejuvenate you run out of steam and become ineffective. Our nurses were a blessing to all of us and sitting up on an overnight shift with one of them I realized that in a lot of ways we were able to bless them too, sharing Phil’s memories World War II, his time in the Navy, in Law School, working with the Hopi and Navajo, his teaching them to sing “I’m a Yankee Doodle Dandy”, letting them bless us with their care and kindness was a blessing to them as well.

Their gift in life is giving care, letting them give it is part of the circle.

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By: Melanie Chartier /2018/05/04/day-44-here-be-dragons/#comment-519 Mon, 07 May 2018 02:18:07 +0000 http://ambersway.com/?p=384#comment-519 Amen!!

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By: Julie Johnson /2018/05/04/day-44-here-be-dragons/#comment-518 Sat, 05 May 2018 13:40:08 +0000 http://ambersway.com/?p=384#comment-518 So glad to hear that Amber is feeling better after the latest barrage of medication, anesthesia, surgery, etc….who WOULDN’T see dragons??? She’ll soon be home and that in itself will be a wonderful tonic for her. At the same time, it’s natural to feel a bit apprehensive about delivering home care but you will be fine. There are many resources available, such as an on-call nurse available through many health insurance carriers so when you review Amber’s discharge care plan ask about these kinds of things. Knowing all the resources will help lessen your anxiety and you’ll soon get into a routine while Amber continues to kick the dragon/whale/elephant’s butt!!!

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By: Stacey Cloutier /2018/05/04/day-44-here-be-dragons/#comment-517 Sat, 05 May 2018 12:58:21 +0000 http://ambersway.com/?p=384#comment-517 This is such a Beautiful Journey. Yesss the Dragon is fiercful. Ready to be released and Conquer what’s ahead. Matt/Caron all you have to do is Guide Her. Ask for wisdom and Knowledge and I so trust you two in God. You two are AWESOME Parents. May God just bless your day today and strength be built more inside you two and Precious Amber in Jesus name Amen

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By: Amy Meyer /2018/05/04/day-44-here-be-dragons/#comment-516 Sat, 05 May 2018 03:23:54 +0000 http://ambersway.com/?p=384#comment-516 Almost home sweet little miss… You are so brave Amber. Someday you’ll read all of these amazing posts from your parents and wonder where they got the strength…. From love.

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By: Lucia R. Mattern /2018/05/04/day-44-here-be-dragons/#comment-515 Sat, 05 May 2018 02:53:09 +0000 http://ambersway.com/?p=384#comment-515 I go back and forth about who is braver, stronger, more admirable, but I really don’t know, can’t make up my mind. Amber, Caron, Matt. All of you are inspiring and heroic. Your strength and faith and resilience are truly incredible, all of you. Bless each of you.

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By: kpchartierblog /2018/05/04/day-44-here-be-dragons/#comment-514 Sat, 05 May 2018 02:29:14 +0000 http://ambersway.com/?p=384#comment-514 ]]> Beautifully said, Matt. 💚

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By: Amelia /2018/05/04/day-44-here-be-dragons/#comment-513 Sat, 05 May 2018 02:28:33 +0000 http://ambersway.com/?p=384#comment-513 ❣💙💙💚💚💜💜🐉🐉]]> I believe that amber is the dragon. And wants to fly around and play with Rea. And won’t give up any time soon. She is determined to get home and see Rea❣️❣️💙💙💚💚💜💜🐉🐉

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