/2018/05/21/day-61-an-almost-perfect-day/ A blog to record the journey of our 6 year old daughter Amber's progress, which began when she was rushed to the ER on March 22 2018 with a hemorrhaged tumor that caused a stroke, and the discovery that she has glioblastoma, a very aggressive form of brain cancer. We're going to make this journey in Amber's Way – with some spunk, a smirk, and a ton of hope and faith. Sun, 18 Aug 2024 00:47:45 +0000 hourly 1 https://wordpress.org/?v=6.6.1 /2018/05/21/day-61-an-almost-perfect-day/#comment-676 Wed, 23 May 2018 01:48:36 +0000 http://ambersway.com/?p=482#comment-676 ]]> To a remarkable family full of love and hope. Keep your spirits up because you all lift ours up! You are the super family! We all keep you in our prayers. ❤️

]]> /2018/05/21/day-61-an-almost-perfect-day/#comment-675 Wed, 23 May 2018 00:35:45 +0000 http://ambersway.com/?p=482#comment-675 She’s had to fight so hard these past months. And to have to come to terms with so much at a young age! We cant even begin to know unless you’ve truly been there. Tears of frustration and sadness knowing how she woke up and everything was different. But tears can be so healing and don’t we do them where we are safe to let our guard down? Ambers home is a beautiful place for her right now with all these medical appointments! Where she can vent and share her fear, her loss. Super Amber Grace, you are not alone sweet girl! Our entire school loves and misses you so much! And Jesus cried so it’s ok for us to as well. Tears say more than words ever could!

]]> /2018/05/21/day-61-an-almost-perfect-day/#comment-674 Tue, 22 May 2018 19:37:15 +0000 http://ambersway.com/?p=482#comment-674 ]]> She will have a lot of those days . She has to look at how far she has come. It’s unbelievable! I’m so proud of her !! ❤️

]]> /2018/05/21/day-61-an-almost-perfect-day/#comment-673 Tue, 22 May 2018 18:19:14 +0000 http://ambersway.com/?p=482#comment-673 ]]> My heart breaks for her in her struggle and you in yours
I pray for peace for all of you
❤️❤️❤️❤️❤️❤️

]]> /2018/05/21/day-61-an-almost-perfect-day/#comment-672 Tue, 22 May 2018 13:32:29 +0000 http://ambersway.com/?p=482#comment-672 Amber, keep up the hard work. Sometimes you go two steps forward and five steps backwards, but you will get there. Remember, we are all in your corner and we love you! You are in our prayers daily.

]]> /2018/05/21/day-61-an-almost-perfect-day/#comment-671 Tue, 22 May 2018 11:15:58 +0000 http://ambersway.com/?p=482#comment-671 Oh Amber, you have come so far already baby girl.
We are happy even in your tears and heartache. We are all just happy to be able to see those tears and heal that heartache. You have so much more to do. Your going to be running, walking, and swimming in no time. For now heal and grow so very strong. We love and miss you so very much.

]]> /2018/05/21/day-61-an-almost-perfect-day/#comment-670 Tue, 22 May 2018 10:49:17 +0000 http://ambersway.com/?p=482#comment-670 Nothing harder than to watch your child in pain. Amber is always in our prayers, but so are you and Matt.
May God bless you. May Mother Mary share her strength with you and lift you up.

]]> /2018/05/21/day-61-an-almost-perfect-day/#comment-669 Tue, 22 May 2018 09:40:20 +0000 http://ambersway.com/?p=482#comment-669 (((Sending you all LOTS of big HUGS)))
Keep your head up Amber!

]]> /2018/05/21/day-61-an-almost-perfect-day/#comment-668 Tue, 22 May 2018 09:25:16 +0000 http://ambersway.com/?p=482#comment-668 And that’s how it unfolds. Everybody, everybody has a “down” day when dealing with something as overwhelming as this. You hold each other up on the “down” days and keep moving. Amber (despite being extraordinary) is just a little girl; her frustration and fear must be enormous.
Hugs and ice cream sandwiches are really the best medicine on “down” days.

]]>