Amber received her first sponge bath today along with a very much needed shampooing.
After the bustle of her bath the “T” team came in in a swarm: Physical Therapy, Occupational Therapy, and Speech Therapy. They decided it was time for her to sit in a chair. So they lifted her gently making sure all of her tubing was out of the way yet still connected and put her in it. She looked like such a big girl and she looked a little relieved maybe to be out of that bed . . . who wouldn’t be after 16 days of being laid up? She ended up staying like that for 2 hours! She was definitely tired by the end of the session. While she was in her chair, the Speech Therapist tried giving her some sips of water. She did swallow a little bit but did end up coughing which the therapists think scared her because she made sure to keep her lips tight when the therapist tried apple sauce. Right now she is getting an IV with nutrients but Dr. Martin has warned us that she may require a feed tube through her belly to get the feeding that she really needs.
She has not done much communication today with us I think she is exhausted and frustrated from the past couple of days . . . that or maybe as she’s coming down from the sedation and reality is starting to sink in?
So, still moving forward, one step at a time, and many many steps still to go . . .