I’d like to start with a thank you (again). We’ve shared some deep, truthful, raw feelings we’ve had through this process. While we have had other significant trials in our lives, this is by far the most difficult for us. But the comments, emails, texts, phone calls … all of this support for us as we support Amber … has been incredible. Today has been truly moving for us.
Several have commented on the strength of our Faith reflected in our posts here, which made us pause for a moment – we’ve never considered our Faith particularly strong. Sure, we were both raised Roman Catholic, bring our family to Church weekly, and do Believe. But, we’ve never been tested like this before, to understand ourselves how strong our Faith really is. This too has been a moving realization for us.
This morning, PT/OT came together and got Amber out of bed and into her chair. They did a whole bunch of exercises with her, which seemed to wake her up and energize her a bit. Still difficult watching her go through these basic muscle exercises, but was quite reassuring to take her down the hall in her chair, and see her enjoy the change in scenery and activity. She even got to pet a dog in the hospital for a bit. And then, Valentine the clown came to visit, and shortly behind was Father Charlie! Amber had a good time with her visitors, lots of smiles. Was very good to get her moving today.
But the biggest news – today, Amber was moved out of the ICU! With all the tubes out (except the feeding tube) and being stable, it was time to “graduate” to Recovery on the eighth floor. So we moved all of the cards, flowers, toys, clothes, and food up to the new room. Again, CCMC is a fantastic place – her new room is bright and cheery, private with a nice couch/bed for us to sleep on, and a private bathroom. It reminded me a little of Moving Day on the first and last days of college.
And lastly, we have a target we are moving towards. April 30 is the tentative date for Amber’s next MRI and surgery, to remove any tumor regrowth and replace the skull flap, and May 15 is tentatively when we begin the first round of cancer treatments, as radiation therapy.
So lots of moving today; and a prayer that we just keep moving forward.