Amber has been doing really well on the Recovery floor.
Amber is definitely being more active. Lots of smiles, even a few eye-rolls for Daddy.
We had a great session with physical therapy, occupational therapy, and speech therapy all together. They helped her sit up, and she started supporting her head herself. Then, they offered her a blue popsicle – and she opened her mouth WIDE and stuck out her tongue! A few licks later, she took a bite and swallowed! We even got her to stick out her tongue to show off how blue it was. That is the first food Amber has had in three weeks, and she clearly enjoyed it – so much, that shortly after we heard her trying to make sounds! PT/OT/ST were very happy with this (as were Mommy and Daddy), so tomorrow PT/OT are going to try giving her a shower and having her support herself (with assistance) on her arms.
Caron went home tonight to spend time with the rest of the family (we’ve been alternating nights at home), so we did a little video chat to say good night – and at the end, when I said “ok Amber, can you say good night to Mommy?”, I definitely heard some (weak) sounds from her mouth!
We continue to make good progress. Next week we’ll be looking to add a g-tube to make sure she is getting sufficient nutrition, and we’ve got 3 weeks to build her back up to be ready for the next major steps: MRI, surgery (replacing the skull flap) and then to begin the cancer treatments shortly after.
And so, we pray for strength and healing for Amber over these next few weeks, and the mental and emotional fortitude for all of us to start preparing for that next phase.