Wish we had better news to share with you today. In a nutshell, the day was a big let down. Amber had her MRI and unfortunately, the results came back with what we were fearing – growth. Because the Pembrolizmaub is not working, they decided not to have Amber do the infusion today, nor any others as she will not be on this particular clinical trial anymore.
We have been in contact with Dr. Gillan from CCMC and she has some backup plans in the works. One possibility is two oral medications: Chemo and a medication that will target GBM stem cells.
And meanwhile still, Dr. Gillan and the doctors from MSK are investigating other potential clinical trials.
We are grateful to have MSK and CCMC working with us, joining us in the fight. But still …
… I’m trying to be open minded and I’m trying not to be mad. But right now, I’m angry, sad, defeated, numb, exhausted, heart broken. This sucks. This sucks BIG TIME. This poor little girl. For what happened to her 8 months ago to what’s happening to her right now. It’s hard to hang onto hope when “hope” is literally a tiny little shred of a string . . . that’s fraying . . .