Day 17, Evening Edition

After a sponge bath in the morning, the doctors felt that she needed to have the feeding tube put back in. As I’m standing there watching our nurses, Rose and Angie, struggle to get it placed correctly, Amber is clearly in discomfort, even with medication. I felt so bad and had to stop myself from crying several times. After what felt like an eternity, they were done.

We got to celebrate Matt’s father’s 70th Birthday with Amber today. After hanging out with her, Uncle Mark and Auntie Meg came up to look after her for a few hours so we could go out for lunch to celebrate than go to Mass at Father Charlie’s Church. After Mass, Father Charlie gave Matt and I big hugs and asked about Amber. He also let the kids pick out Koosh balls.

Back at the hospital, we find that the doctors have removed her a-line and one of her IV’s. Marie gives Amber a pink Koosh ball that she picked out for her as well as Ryan giving her the purple one he picked out. Amber loved it! Marie secured it to her finger and she was moving her arm and hand all around with it, touching it, squishing it, pincer grasping it…what a great toy (and therapy) For her!

4 thoughts on “Day 17, Evening Edition

  1. So sorry to hear the feeding tube is back in place. Hopefully just short-lived so she can get nutrients while she heals. Love you Amber Grace!

  2. Yes, I agree with Amy. Just a tempory tube for the nutrients. So sweet that Marie and Ryan gave Amber the Koosh balls. Loving on their sister so much. Love you all and miss you. 💖💖

  3. Meg and I had a great time with Amber ! Anytime you need us again let us know ! Amber was such a good girl and she looks great ! ❤️❤️❤️

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