Oatmeal and spinach are great, but … sometimes you just need a little bacon! Amber started the day with Speech Therapy bringing in some new breakfast items – things that are harder to chew and swallow, to see if Amber is ready for a “regular” menu. Waffles, whole strawberries, and … bacon! The bacon was a little tough, but Amber gnawed her way through. Following the successful breakfast test, Amber’s menu has been upgraded; she now can order hotdogs and hamburgers, carrot and celery sticks, chicken nuggets. She still needs to eat slowly and carefully, but it’s nice to have her eating pretty much back to normal.
Unfortunately, Amber has caught a bit of a cold along the way though. Lots of sniffling and coughing, enough to upset her stomach. So, breakfast didn’t stay in her stomach very long. But, the other meals stayed down, and she is doing well.
Then, as usual, on to OT and PT. Man, I wish I had Amber’s perseverance when it comes to exercise. An hour on the swings working her arms and balance, and an hour kneeling and standing, kicking her new rainbow-colored kickball.
We are just a handful of days away from the next big milestones – Monday is the MRI to see how the brain is doing and determine if there is any primary tumor regrowth (we won’t get the results until Tuesday, though), and Thursday (May 3) is the surgery to replace the skull flap. And then, we begin eating the whale shortly after.
But hopefully, with a little more perseverance over the next 2 weeks, we’ll have enough of the elephant eaten that we can come home before we tackle that whale. I think that’s just what we’ll need to renew Amber’s appetite, and re-energize all of our spirits.